Image

June 2024 Zebra Spotlight: Sara Sullivan

As one of the faces of Scleroderma, I am Sara Sullivan. My journey has been marked by unforeseen trials that have tested my strength and resilience. My diseases have caused me pain and
Featured Image for "May 2024 Zebra Spotlight: Elizabeth Alden Vacha Bogan"
My name is Elizabeth Alden Vacha Bogan.  I never thought one disease, three letters, EDS, would change my life so much, but it seems fitting to have 3 last names at 44. I was adopted and we
Featured Image for "April 2024 Zebra Spotlight: Theresa Navalta"
My name is Theresa Navalta, and I am honored to be chosen to share my story. I don’t usually talk about my illnesses, but I do know that when my story began, I
Featured Image for "March 2024 Zebra Spotlight: Sue Larson"
Hello everyone! My name is Sue Larson, and I am very honored to be asked to share my story as a zebra in the hopes that someone else can relate to my experience
Featured Image for "February 2024 Zebra Spotlight: Frank Provo"
Hello all you happy people! My name is Frank Provo, and I am a Certified Public Accountant working in the insurance industry. I consider myself lucky to have an employer that is flexible
Featured Image for "January 2024 Zebra Spotlight: Crystal Bradley"
Hi! My name is Crystal Bradley, and I am a regulatory chemist by trade, although I am on medical leave currently. I love all things science, particularly the natural aspects! I love the
Featured Image for "December 2023 Zebra Spotlight: Allison"
Hi! My name is Allison. I’m a Medical Laboratory Scientist. I enjoy cooking, all things Harry Potter and spending time with my family. 5 Invisible Symptoms 4 Things That Help Manage My Pain
Featured Image for "November 2023 Zebra Spotlight: Marie Sander"
Hi!  My name is Marie.  I’m a wife, auntie, and preschool teacher from New York.  I’m also a disabled athlete.  I started dancing at age 10 and running at age 24.  A few days after running a half
Featured Image for "October 2023 Zebra Spotlight: Tara Curtin"
Hi! I am Tara Curtin, and I am a wife, a mother to two amazing girls (and lots of pets), daughter, sister, friend, caregiver, Zebra, and so much more. It took many years
Featured Image for "September 2023 Zebra Spotlight: Janie Cavanagh"
Hi everyone, my name is Janie Cavanagh and due to a major car accident in 1996, I live with chronic neck and head pain. Due to my prolonged healing process and the delay
Featured Image for "August 2023 Zebra Spotlight: Jeweliet Donley"
Hey! My name is Jeweliet Donley. I’m 19, and for the past year, I’ve been on a hunt to learn my way around the diagnosis of POTS (Postural Orthostatic Tachycardia Syndrome). My life has changed
Featured Image for "July 2023 Zebra Spotlight: Ashley Mann"
My name is Ashley Mann. I am a stay-at-home dog and cat momma in Lansing, Michigan. Over the last few years, I’ve embarked on an ongoing journey of self-discovery, seeking personal growth and
Featured Image for "June 2023 Zebra Spotlight: Kirbay Preuss"
My name is Kirbay Preuss. I am a full-time manager at my family’s business, Preuss Pets. I teach yoga, and I’m a mom to a 160lb Great Dane and a 17-month-old little bundle
Featured Image for "The Power of Social Media When You Are Chronically Ill, (Written by Katie Dama-Jaskolski, President & Co-Founder)"
I spend a lot of time on Facebook. A. Lot. In fact, thinking of not having Facebook makes my hands sweat and gives me a knot in my stomach. I have been thinking
Featured Image for "Why I Have Back-to-School Depression as a Chronically Ill Teacher (Written by Katie Dama-Jaskolski, President & Co-Founder)"
As I sit here in the infusion center, on back-to-school eve, I feel a mix of emotions. Hopeful, excited, scared and even a bit depressed to see summer go. Yes, I love summer.
Featured Image for "An Ode to My Thighs: Thank You for Helping Me Through Chronic Illness, (Written by Katie Dama-Jaskolski, President & Co-Founder)"
To my lovely thighs: When I started gymnastics, I quickly realized I was one of the gymnasts with “the big thighs.” I grew to hate you. Through elementary school, through middle and high school and
Featured Image for "11 Pieces of Advice for Caretakers Helping People With Illnesses, (Written by Katie Dama-Jaskolski, President & Co-Founder)"
Caretakers, in my opinion, are unsung heroes. Often it is the person who is sick that receives the caring phone calls, messages, care packages, etc. My caretakers are the ones who have been
Featured Image for "10 Strategies to Help You Feel Beautiful When You’re Chronically Ill (Written by Katie Dama-Jaskolski, President & Co-Founder)"
Let’s face it. It’s hard to feel attractive in your own skin when you feel like your body is turning on you. If I am sick, I struggle with feeling beautiful in my
This post is not meant to offend anyone.  But it is something that I constantly experience on a day to day basis.  I know in my heart people mean well.  And that they
For as long as I can remember, I have been angry with my body for one reason or another. As a gymnast for 19 years, one might imagine the body image issues I